The Norwegian PraksisNett: a nationwide practice-based research network with a novel IT infrastructureстатья из журнала
Аннотация: Clinical research in primary care is relatively scarce. Practice-based research networks (PBRNs) are research infrastructures to overcome hurdles associated with conducting studies in primary care. In Norway, almost all 5.4 million inhabitants have access to a general practitioner (GP) through a patient-list system. This gives opportunity for a PBRN with reliable information about the general population. The aim of the current paper is to describe the establishment, organization and function of PraksisNett (the Norwegian Primary Care Research Network).We describe the development, funding and logistics of PraksisNett as a nationwide PBRN.PraksisNett received funding from the Research Council of Norway for an establishment period of five years (2018-2022). It is comprised of two parts; a human infrastructure (employees, including academic GPs) organized as four regional nodes and a coordinating node and an IT infrastructure comprised by the Snow system in conjunction with the Medrave M4 system. The core of the infrastructure is the 92 general practices that are contractually linked to PraksisNett. These include 492 GPs, serving almost 520,000 patients. Practices were recruited during 2019-2020 and comprise a representative mix of rural and urban settings spread throughout all regions of Norway.Norway has established a nationwide PBRN to reduce hurdles for conducting clinical studies in primary care. Improved infrastructure for clinical studies in primary care is expected to increase the attractiveness for studies on the management of disorders and diseases in primary care and facilitate international research collaboration. This will benefit both patients, GPs and society in terms of improved quality of care.Key pointsPractice-based research networks (PBRNs) are research infrastructures to overcome hurdles associated with conducting studies in primary careImproved infrastructure for clinical studies in primary care is expected to increase the attractiveness for studies on the management of disorders and diseases in primary care and facilitate international research collaborationWe describe PraksisNett, a Norwegian PBRN consisting of 92 general practices including 492 GPs, serving almost 520,000 patientsAn advanced and secure IT infrastructure connects the general practices to PraksisNett and makes it possible to identify and recruit patients in a novel way, as well as reuse clinical dataPraksisNett will benefit both patients, GPs and society in terms of improved quality of careThis paper may inform and inspire initiatives to establish PBRNs elsewhere.
Год издания: 2022
Авторы: Espen Saxhaug Kristoffersen, Bjørn Bjorvatn, Peder A. Halvorsen, Stein Nilsen, Guro Haugen Fossum, Egil A. Fors, P. Jørgensen, Berit Øxnevad-Gundersen, Svein Gjelstad, Johan Gustav Bellika, Jørund Straand, Guri Rørtveit
Издательство: Taylor & Francis
Источник: Scandinavian Journal of Primary Health Care
Ключевые слова: Healthcare Systems and Technology, Primary Care and Health Outcomes, Healthcare cost, quality, practices
Другие ссылки: Scandinavian Journal of Primary Health Care (HTML)
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PubMed Central (HTML)
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DOAJ (DOAJ: Directory of Open Access Journals) (HTML)
Duo Research Archive (University of Oslo) (PDF)
Duo Research Archive (University of Oslo) (HTML)
Duo Research Archive (University of Oslo) (PDF)
Duo Research Archive (University of Oslo) (HTML)
PubMed Central (HTML)
PubMed (HTML)
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Том: 40
Выпуск: 2
Страницы: 217–226