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Children with illparents: extent andnature of caringactivities Ellen Katrine KallanderBente WeimandSaul Becker2017 год

Children with ill parents: extent and nature of caring activities
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Аннотация: Previous studies have shown that children may take on higher extents of caring activities if their parents are affected by severe illness or disability, especially when their parents lack access to formal and informal care.This study examined the extent and nature of caring activities done by patients' children; differences in caring activities between different types of parental illness; factors associated with caring activities.An explorative cross-sectional multicentre study.Parents as patients in specialised healthcare services, and their children, were recruited from five health trusts in Norway. The sample included 246 children aged 8-17 years and their 238 parents with severe physical illness (neurological disease or cancer) (n = 135), mental illness (n = 75) or substance abuse (n = 28).Multidimensional Assessment of Caring Activities (MACA-YC18).A large number of children with ill parents are performing various caring activities. Increased caring activities among children due to their parent's illness were confirmed by their parents, especially with regard to personal care. We found no significant differences in the extent of caring activities between illness types, but there were some differences in the nature of these activities. Factors significantly associated with the extent and nature of caring activities were as follows: better social skills and higher external locus of control among the children; and poorer physical parental health. Parent's access to home-based services was limited.In recruitment of participants for the study, a sampling bias may have occurred.To promote coping and to prevent inappropriate or extensive caring activities among children with ill parents, there is a need for increased access to flexible home-based services adapted to the type of parental illness.
Год издания: 2017
Авторы: Ellen Katrine Kallander, Bente Weimand, Saul Becker, Betty Van Roy, Ketil Hanssen‐Bauer, Kristin Stavnes, Anne Faugli, Elin Kufås, Torleif Ruud
Издательство: Wiley
Источник: Scandinavian Journal of Caring Sciences
Ключевые слова: Family Support in Illness, Childhood Cancer Survivors' Quality of Life, Intergenerational Family Dynamics and Caregiving
Другие ссылки: Scandinavian Journal of Caring Sciences (HTML)
Duo Research Archive (University of Oslo) (PDF)
Duo Research Archive (University of Oslo) (HTML)
PubMed (HTML)