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Holding on whileletting go: traumaand growth on thepathway of dementiacare in families Lynne McCormackKatrina TillockBruce Walmsley2016 год

Holding on while letting go: trauma and growth on the pathway of dementia care in families
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Аннотация: Objectives: Limited research explores the medical model of residential care in dementia from the family caregiver's perspectives.Method: This study sought subjective interpretations of nine family caregivers who experienced relinquishing their status as primary caregiver to a medical model, dementia care residential setting. Following semi-structured interviews and transcription data was analysed using interpretative phenomenological analysis.Results: One superordinate theme, navigating 'system' control, overarched three subordinate themes: connecting/disconnecting, windows closing, and capacity for sensation. Navigating system control reflected participants' experience of circumnavigating a medical system fraught with hierarchical challenges inclusive of a complex maze of contradictions that appeared threatening, yet appeared comforting; authoritarian, yet often humane. For them, care of self, while advocating for a family member with dementia, required vigilance to manoeuvre a system of care that imposed its uninvited authority at will. Connection/disconnection highlights the enduring struggle for inclusivity in caregiving despite the omnipresent trauma of windows closing. Psychological growth came to these participants through an unexpected capacity for sensation which offered a unique lens to communication with the family member with dementia primarily through sensory exchange.Conclusions: Models of dementia care and therapeutic interventions could inclusively involve dementia family caregivers who may be experiencing traumatic distress, and associated guilt, stigma, loss, and grief. Co-existing psychological wellbeing, however, is possible when family members are encouraged to transition communication to sensory awareness and exchange as windows close.
Год издания: 2016
Авторы: Lynne McCormack, Katrina Tillock, Bruce Walmsley
Издательство: Routledge
Источник: Aging & Mental Health
Ключевые слова: Grief, Bereavement, and Mental Health, Dementia and Cognitive Impairment Research, Palliative Care and End-of-Life Issues
Другие ссылки: Aging & Mental Health (HTML)
NOVA (University of Newcastle, Australia) (PDF)
NOVA (University of Newcastle, Australia) (HTML)
PubMed (HTML)