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Children'sperspective ofquality of life inepilepsy Nora FayedAileen M. DavisDavid L. Streiner2015 год

Children's perspective of quality of life in epilepsy
статья из журнала

Полный текстСтраница публикацииПубликация в OpenAlex
Аннотация: To study child mental health, parental support, and social support of children with epilepsy as these relate to quality of life (QOL) using child self-report, seizure-related variables, and estimated verbal intelligence based on receptive vocabulary.A cross-sectional structural equation model of baseline data from the QUALITÉ cohort study, which includes 6 Canadian child epilepsy ambulatory programs. A sample of 3,481 children were screened for the following eligibility: 8 to 14 years of age, with active or medication-managed epilepsy. Of 894 eligible children, 506 agreed to participate, of whom 26 were then excluded because of an inability to self-report based on a standard cutoff score of receptive vocabulary lower than 70. The primary outcome of child-reported QOL was measured using the Child Epilepsy QOL Questionnaire.From the child's perspective, epilepsy-specific QOL is strongly related to their mental health and social support but not to their seizures. Specifically, child mental health and peer support exhibit direct associations with QOL; parental support has both direct and indirect associations with QOL (via child mental health); estimated verbal intelligence exerts its strongest association with QOL through mental health; and seizure status exhibits a weak relationship to QOL only through mental health.Among children with epilepsy aged 8 to 14 years, mental health and social support should be areas of focus in the assessment of QOL. Controlling seizures is insufficient care for influencing the child's perception of their life.
Год издания: 2015
Авторы: Nora Fayed, Aileen M. Davis, David L. Streiner, Peter Rosenbaum, Charles E. Cunningham, Lucyna Lach, Michael H. Boyle, Gabriel M. Ronen, Mary Connolly, Luis Bello‐Espinosa, Mubeen F. Rafay, Juan Pablo Appendino, Michael Shevell, Lionel Carmant
Издательство: Lippincott Williams & Wilkins
Источник: Neurology
Ключевые слова: Epilepsy research and treatment, Pharmacological Effects and Toxicity Studies, Childhood Cancer Survivors' Quality of Life
Другие ссылки: Neurology (HTML)
Europe PMC (PubMed Central) (PDF)
Europe PMC (PubMed Central) (HTML)
PubMed Central (HTML)
PubMed (HTML)